Saturday, July 14, 2018

Another Busy Saturday 

We started by taking a morning walk at Exploration Peak Park. We enjoyed a stroll around the park, though it was already getting hot.(Around 90•)

The highlight of the day was going to Zak Bagans Haunted Museum here in Vegas. It’s an old Tudor mansion that he has refurbished to house his extensive collections of haunted, possessed and weird paraphernalia.  


We were only allowed to use our cameras/phones outside and in the lobby, so I didn’t get many.


I wantedto take this fellow and his twin home with me. 


We were greeted by this guy in the lobby. Sadly, we had to put our phones away before going on the actual tour. Also, no water was allowed on the tour.

Our tour guy, Craig, was very knowledgeable about the artifacts and displays. The first room was a doll room... This may have been my only paranormal experience... I thought I saw one of the dolls heads move. At the time Craig had leaned on the table which held the doll, so this probably explains the dolls movement. 

You have to sign waivers before taking the tour. They said someone had a heart attack and others have fainted. I could see this happening because it was so hot in the mansion. It actually felt cool to go outside in the 100•+ Las Vegas Summer. Here is a video of me while I was waiting in the air conditioned car for Ralph. If you look at my face you can see it looks ruddy from being too hot. They do not allow drinks, not even the water the sell outside on the tour. 

I didn’t experience any paranormal activity on the tour. The hairs on my arms didn’t stand up, nothing tickled my neck or tugged on my sleeve. I didn’t get an oppressive feeling or any other thing one might expect. Not even from the doll that was supposed to be possessed. I think her name was Peggy. They played a lot of noise in several of the rooms, which was annoying, but not paranormal. The use of poorly lit rooms, some flashing lights and people jumping out at you was used as some cheap scare tactics and totally unnecessary since many of the objects were creepy in their own right. 

I think I felt more of the heavy chest feeling at the Mob Museum than at Zac Bagens Haunted Museum. I wish they given us more time to really look at the items and read the information. 

We did enjoy seeing all the items. 

I hope you are spin free. 

Love, Peace and Light! Rita

PS. I had balance issues with the low light and had to hold onto hubby or rails when available 

Mississippi Pot Roast, Yorkshire Pudding and Vertigo 

Yesterday I had an attack. It wasn’t the room spinning kind, but it was vertigo and made me feel awful. I ended up in bed before 7 pm. 

Yikes, I usually love spending time with my husband and would have preferred to stay up with him, but my head wouldn’t let me. 

He made Mississippi Pot Roast and I managed to make Yorkshire Pudding to go with it. They aren’t the prettiest ones, but it was my first time making them. They are like a hollow biscuit. Tasty and easy to do.

I ate my dinner which was tasty. You can watch the video of my reaction to the amount of salt in those two packages of my prepared mixes, next time we’ll be doing them from scratch with no salt. 

Here are the ingredients. You cook it in the slow cooker for 8 hours. 

Anyway after I hate my head got really full and I was more dizzy with vertigo . (Do you think the salt had something to do with it?) I had already been having vertigo, but it got worse. So I went to bed. I slept for an hour and I felt better, but not the best. I went downstairs to let Ralph know I felt better and then back to bed for me. 

Today so far I am just swaying, no vertigo. I hope you all are spin free.

Love, Peace and Light! Rita 

PS. I am (as are most of people with MD are) very good at pretending to be okay.


Friday, July 13, 2018

Thinking


I have been doing a lot of thinking lately. I have too much time on my hands since I am stuck in the house unless someone takes pity on me and takes me out. It sucks not being able to drive. My good days are few and far between. The brain fog, dizziness, vertigo and mini-spins seem to be a daily thing. Luckily I have only had one major vertigo attack since December. A major attack for me is where the room is spinning, it lasts for hours and knocks my balance out for a couple of days. 

So, I have been thinking about what I am going to do when I get to the next stage... Deafness may occur along with the constant balance issue. 

With this a part of the disease, but much uncertainty when it may occur, I wonder if it might be beneficial to get an assist dog. Part of my problem with going places on my own is that I could lose my balance and possibly fall. Even with people around, they don’t always remain at my side. A dog would. 

My husband feels that an assist dog is too big and we have two dogs already. One of whom is jealous of other animals. Right now I can wait, because my hearing hasn’t left and I manage the balance issues. 

A new friend I made through Facebook is training her pup to be an asset dog. You can read about it here on Maverick and Me.

I don’t have the patience to train a dog so I would need to pay someone to do it, which costs money I don’t have. Oh, well, one day at a time. Thanks for reading as I think. 


I hope you are spin free!

Love, Peace and Light! Rita

Tuesday, July 10, 2018

The Waiting Game


I had my first full blown vertigo attack on May 24th in years with the room spinning and major balance issues. I came out of remission in December of 2017 while at Disneyland with wavy walls, ear fullness, fatigue and nausea.

I had to wait for my doctor to get back from maternity leave as the replacement doctor didn’t get the ball rolling to get into see an ENT. Then my insurance insisted that I have an MRI before granting the referral. 

I had my MRI of my brain/ear canals on Friday. The results were still normal. I have had this about 18 years ago, so I wasn’t worried. It would be nice to have something show up, because then there might be a possibility of a cure. But alas that is not meant to be.

Now I have to wait for the referral to go through in order to schedule an appointment. Once it does, it will no doubt take more time to get in. 

I need to see one so I can find a medication that works. Meclizine, my old standby, no longer helps with general dizziness. 

I feel that there may be more than one issue going on causing my symptoms. Yes, I have MD and, yes, it’s out of remission. When my Mitral Valve Prolapse acts up it makes me dizzy. This may be another issue altogether and only a doctor will be able to diagnose it. Unfortunately, if that is part of the problem I may need another referral to a heart specialist, which probably means more tests. 

I really hate waiting for help. It’s frustrating and doesn’t help my anxiety levels at all. I have been doing deep breathing and relaxation exercises to contain the anxiety, but every moment I have to wait makes it more difficult.


Thanks for letting me rant. I hope you are spin free.

Love, Peace and Light! Rita

Monday, July 9, 2018

Inspiration 


Inspiration~ I have been thinking of this subject lately... I need inspiration in order to write, whether it’s fiction or non-fiction. 

I gather inspiration for my fiction writing in everything I do, whether I’m reading or traveling or sitting on my couch. I can find inspiration in a word or group of words. It comes from so many sources that it’s amazing that I’m not overwhelmed.

But in real life what inspires me to keep going everyday? When my body is in pain, my balance is off, the brain fog is so thick that I can’t form a cherehent thought, what gets me up?

I have a friend who has not been defeated by spina bifida. When I just want to give up, I hear this amazing woman’s voice in my head, “Get your ass up.” So I do.

I belong to Ménière’s Worldwide and people from all over the world inspire me to keep going. Some have things worse than me and I learn from them everyday. (I know I mention this group frequently, but they have been a godsend.) They help breakthrough the depression that tends to creep up when I am faced with life’s obstacles. 

I tend to be dark deep within the depths of my mind, but their humor (humour for my UK friends) breaks through. I look to the light even when my writing turns to the dark. 

My husband inspires me. He may not understand what I feel like, but he rarely complains. He broke his leg (fibula and tibia) and dislocated his ankle in 2016 and still has problems with it, but he gets up faithfully every morning to walk our dogs. I have been having more trouble with my balance, especially in the mornings that I am afraid to venture out with my two small dogs on my own, 


So on the days I have someone with me I try to do things. Girls day with my sister-in-law, I meet friends when I can, sometimes I need to ask for a ride. And I always get out with my husband to camp, cruise or whatever. 

Anyway I have veered off topic. I find things or people who inspire me daily. Who or what inspires you?

Sunday, July 8, 2018

Full Day Yesterday

Saturday began with a short hike and photo-op of Red Rock Canyon. Actually one of the trails before you get to the scenic loop. 

It was a beautiful morning. We went out around 5:30 and we’re home by 7:00. I managed to get a few good pictures, though I had trouble with short spins and my balance. Exercise is supposed to be good for MD, so I am trying to walk more.

Ralph and I went to a matinee at Century Orleans to see Ant-Man and the Wasp. I enjoyed it very much. I won’t say anything about it, other than to watch the credits. The first bit was worth it, but the one after all the credits, not so much. 

We went back to the Red Rock area to Spring mountain to watch Super Summer Theater’s production of She Loves Me. It made me laugh and sometimes that is all that is really needed. Seriously though the actors were superb.

Even though rain threatened and there was some thunder in the distance, we only had a smattering while we sat in our car waiting for the handicapped line of vehicles to move. 

Speaking of handicapped parking... It’s worth it to not have to climb that long line of steps. Instead the parking is right behind the bathrooms and concessions. 

It was a wonderful day. I didn’t let Ménière’s beat me, though it made itself known frequently with short spins and balance issues. I think I’m the only one that notices when I tip or stagger a bit. If they do they probably think I’m drunk. 

I hope you all are spin free.

Love, Peace and Light! Rita

Thursday, July 5, 2018

Escape Rooms

I am terrible at Escape rooms... but it is so much fun to try. This time our friends and I did Haunted Mansion at Escapology. Last time we did The Saw Escape Room. We ended up in jail this time, whereas we did in the Saw Experience. Each was challenging in different ways. 

Ralph and I before we we into Escapology. 

Do you think we’ll improve on our next one? We already know we’ll do Bigfoot at Number 1 Escape Room in Las Vegas, at least we think we’ll do that one next. Maybe, just maybe we’ll find Bigfoot. 

In all our travels we haven’t spotted one. Ralph thought he heard one, but I had to burst his bubble to tell him it was a cow.

These Escape Rooms are good to keep this old brain active. I’ll take every bit of help I can get to keep my brain fogged mind from getting worse.

Tomorrow is my MRI of my head. We’ll see if there is a brain inside it or not. Then I’ll get to see an ENT. Ish me luck in getting more effective treatment for my dizziness and vertigo.

I hope you are all spin free. 

Love, Peace and Light! Rita

PS. I hope you had a fabulous Independence Day in the USA.