Thursday, May 17, 2018

Yanny vs Laurel

What do you hear has been taking over the internet. How can one word sound different to so many people? If you haven’t seen this here is the link.,, Yanny vs Laurel.

When I first listened I heard Yanny. When I listened the next morning I heard  Laurel. My guess is that my hearing is fluctuating as I go bilateral. (I think the Ménière’s is now in both ears.)  I have had a rough few days since this began. You may have noticed that I had 4 good days in my last post. It was just the eye of the hurricane that has been my normal since I went out of remission in December of 2017.

I have good days and bad days. Usually, I just feel dizzy and foggy. Not so the last couple of days. I am actually experiencing vertigo and a change in the loudness of tinnitus in both ears. Usually my left ear is quiet. It has hummed (like locusts) since the beginning of this MD journey, but the right ear usually drowns it out.

The left ear is making itself heard by humming on a different frequency than the other and it’s a tad louder. Fortunately, I can still hear, though some noises hurt my ears and I have to have the volume on tv or radio lower. It makes little sense to me why I can’t stand louder volumes.

I know it’s hyperacusis, but this term is new to me, though the pain, discomfort and discombobulation I feel in some situations is not new to me. I have often had difficulty concentrating when too much stimulation was present. I just thought it was part of ADD.

I am trying to prepare to lose more of my hearing. I hope I don’t, but I am trying to prepare. It seems to be different for each Ménière’s sufferer and I have been lucky to retain most of mine since I was diagnosed in 2000.

There are no good answers as to what I can expect. I know that my hearing is fluctuating and there re changes that I can hear. I can tell by listening to the Yanny vs Laurel how my hearing is at the moment. I’ll just take one moment at a time and enjoy the good days, push through the bad days when necessary and rest on when I can.

I hope you all are spin free!

Love, Peace and Light!
Rita

Sunday, May 13, 2018

4 Good Days

Finally, I’ve had four Ménière’s free days, except the tinnitus, tipping and a bit of a flare when it’s bedtime.  I got my haircut, dyed it myself and went to the grocery store. 

On Friday I followed Ralph to a car place to get his breaks replaced and took him to work. I did laundry and picked him up. We met a friend for dinner at Lindo Michoacan. And then back to pick up his car.

Saturday we watched a childhood friend of Ralph’s play darts. I got a tad annoyed that this woman stood very close in front of me, so that she would occasionally touch me. Okay more than a little annoyed... I thought about lifting my knee, but she would’ve ended up in my lap. 

“I have mean thoughts, but would never act on them. I just want to show you that I am human with all the same feelings as everyone else. Just because I have bad thoughts doesn’t mean I act on them, unless I am writing and then I can.”

This sign greeted us as we were leaving the parking lot of the Plaza. We then grabbed a bite to eat at Smashburger. I am pleased to say I finished most of it without pain. Smaller bites is the answer.


Following lunch we went on to the corporate challenge walk to represent JW Marriott Resort and Spa. I made it the whole way, but I am still tired today. Here are before and after pictures of me.


Don’t worry I am not sunburnt just hot. 

Alas, my Ménière’s free time is at an end. Today my ears are full and I am rocking back and forth. I hope I am able to get another good day and/or days soon. I may have overdone things yesterday. Or the recurrence may be due to sinuses, I seem to be losing my voice. “Ralph likes it when I lose my voice.”

Today we celebrate Mother’s Day with Ralph’s mom, Virginia. Then I rest. 

Have a spin free day.

Love, Peace and Light!

Rita



Wednesday, May 9, 2018

Website

I had to renew my website last week. I paid in full for five years. I hope I remember to ask about payments next time.
I like the looks of it on my phone and my computer. I used pictures of me from 4 years ago, before I regained my weight. I happen to adore the picture of me on top of the baby grand piano, so I used it. If I tried that now the rickety old thing would surely collapse.

Ralph hates that picture and I don’t know why. Perhaps he thinks it’s goofy. What do you all think?

I usually use updated pics, but most of my current pics are selfies or have Ralph and me in them. I might get creative and set up my Canon Rebel to take a more professional photo of me.

Now I need to start rewriting all the novels I have written. I think the world might enjoy them. Okay, maybe not the world, but my niece will. And she is the world to me, so I guess that counts.

Have a spin free day!

Love, Peace and Light!
Rita

Thursday, May 3, 2018

Weather

I used to love the rain, especially a thunderstorm. I would sleep like a baby at night. I loved playing in the rain. Occasionally you might have heard me singing, Singing in the Rain, albeit badly. There is a freshness that comes over the earth after the rain. 

Now, the change in pressure sends my Ménière’s into overdrive. I have been constantly dizzy for the past two days. My ears have been ringing off the hook and the sound changed to a higher pitch more steady ring. Normally it sounds like a bunch of cicadas. This morning though still loud, the cicadas are back. Thank goodness!


As you can see, I was awake from bout 3:30 am on and off. I think the reason I have been sleeping this well is the CBD oil. I used to average 4-5 hours a night. If nothing else it definitely relaxes me. I take the CBD oil without THC, because marijuana gives me migraines. I have had less migraines since I’ve been taking the oil too. 

I hope that my dizziness goes away soon. I am housebound when Ralph’s at work, because I cannot drive when I am dizzy. Even if I tried the visual stimulation would make me nauseous. (Or is that nauseated?) I think I have it right. 

Hopefully, with the weather returning to normal I can get back to normal or as normal as I can be with this disease. 


I think of this song when I am dizzy. Dizzy by Tommy Roe. It also brings back fond memories of when I would sing it to my niece as we whirled around. That was before Ménière’s. Now I wouldn’t want to do that. 

Have a spin free day!

Love, Peace and Light!

Rita


Sunday, April 29, 2018

Avengers & Golden Knights (Spoilers?)

Our day began with an early showing of Avengers:Infinity War. Ah man this movie put my emotions through the ringer. I laughed, cried, and shouted in anger. Okay, so the shouting was internal. I left feeling robbed. 


Knowing that these are Marvel Superheroes and no one really ever dies should make me feel better. Right? I can only speculate that Dr. Strange may have something to do with how things will work out. 

Unfortunately, we’ll have to wait over a year, possibly May of 2019. The bright side is that they’ve already filmed the fourth Avengers movie back to back with Infinity War.

I have read that the powers that be want to focus on the newer Avengers like Black Panther, Antman and some of the others. Time will tell. The Marvel Universe makes great movies. 


Yesterday afternoon Ralph and I met friends and family at PT’s to watch the Golden Knights second game of round two. We had some good conversation and good food. We even celebrated another victory before it was taken away. Then we walked out defeated, but still hopeful for the rest of the playoffs. After we said our good nights (or Knights) we walked outside to a beautiful night and an almost full moon shined brightly over the palm trees. 


It really looked much bigger, but this is what my iPhone saw.

Today, my Ménière’s is rearing its ugly head. I have a constant rocking motion and when I shut my eyes, I seem to first spin in one direction and then back the other way. I don’t know which is worse visual spinning or internal spinning. 

After a nap, my migraine has lessened. I hadn’t had a bad migraine for awhile and thought the CBD oil might be helping. I guess not. The CBD oil without THC helps with relaxation and my arthritis pain has lessened. The pain isn’t gone, but more manageable. 

Well, I am going to rejoin the land of the living, since I feel better. The Astros are doing well today, but Kevin Harvick keeps catching up and then getting passed. Have a spin free day.

Love, Peace and Light!

Rita

Sunday, April 22, 2018

Good Days and Bad Days

Yesterday was a good day. Even not being able to find my debit card nor my insurance cards set me back. Don’t worry I have replacements coming. I will probably find them, now. 


Even on my bad days like on Friday, I put on a mask so others can’t see how I feel. I guess if they pay attention they will notice that I don’t walk straight and that I am well acquainted with the walls and door jams. 

People might even notice that I mix up my words and I can’t think fast. Maybe they don’t realize that is part of having Ménière’s, Fibromyalgia, etc. 

But yesterday was a good day for me. I even managed to drive myself to the bank and to Holley’s Cuppa for a breakfast sandwhich. I took the dogs for a walk, which they loved and recorded a video for my peeps at Ménière’s Worldwide. 

I stayed up all day and didn’t go to bed until 9:30. A new record for me because I have been in bed by 5 if I haven’t remained in it already.

The best thing I ate two meals without loosing it all. I am not sure if that’s from the reflux disease or Ménière’s or something else. On the bright side I’ve lost the weight I put on during the cruise. 

I have decided that when possible I am going to listen to my body. If it needs rest, then I will rest. On the good days I will probably overdo things, because I need to get caught up on stuff. I can only hope that doesn’t put me back in bed the next day. 

I hope everyone out there is well and you all have spin free days!

Love, Peace and Light!

Rita



Thursday, April 19, 2018

Blue Sky Day

It looks like it is going to be a beautiful blue sky day in Las Vegas. I took this picture months ago, but the sky is blue.

Not only is it beautiful outside, but I finally have some relief from the Ménière’s, Fibromyalgia, Asthma and Allergies that have plagued me since we returned from our cruise last Thursday. 

I have been in bed most of the time since we returned. I could only eat one meal a day without repercussions. I had absolutely no energy. The breathing treatment for my asthma made the Ménière’s worse, because it’s sodium based. I could taste the salt. Salt has always been a trigger for me, since this started. Even now my tinnitus is ringing off the hook. 


Ralph and I managed to get to church and went to breakfast on Sunday. Sometimes I push through the dizziness and fatigue to try to be normal. As I have said before this disease or ailments won’t beat me, even though I may have to pay the price later.

I have some household chores to catch up on, but I hope to get out a bit to enjoy the beautiful day.  

Always enjoy the good days, but pay attention to your body. It will tell you when it’s time to slow down.  


I still want to live on a cruise ship. No allergies at see and I blend in when I am bouncing off walls, though frankly my symptoms abated for the most part once we were moving. It would be a fun experiment to see if it’s just a fluke or does it really help stabilize me. Who wants to join me? 

Have a spin free day!

Love, Peace and Light! Rita