Thursday, February 28, 2019

Rare Disease Day

First I want to send hugs to all who have a rare disease. I wrote this on my Facebook timeline, but need to share with you.

Meniere’s Disease is a rare disease, so much so that doctors don’t know what causes it or how to cure it.  It is characterized by vertigo, dizziness, tinnitus, ear fullness, drop attacks I and deafness.

It is unpredictable with good days and bad days. I look normal even on not so good days. Though you may notice that I tip or stumble or walk like I’m drunk. I have more of these days then even the people closest to me realizes.

On my not so good days, when my ears are full and the tinnitus is loud, my brain feels cloudy. I have trouble concentrating, I carry on especially for fun things. Sometimes I let people know how I feel, just in case it turns into a full vertigo attack.

I have been fortunate not to have had a vertigo attack in public. Mine are usually when I awaken.  I have had mini-spins (one or two rotations) in public, also, wavy walls or shifting floors.

Even on good days the tinnitus is present as are the balance issues. I try to limit my salt intake, which helps with the loudness of tinnitus. It doesn’t seem to affect the vertigo.

As I learn my new normal, I try to enjoy every minute that I can. I have had this disease since before my diagnosis in 2000. Then I had frequent bouts of vertigo and slam attacks. I went into remission around 2012, but came out of remission at Disneyland in 2017. So now I am learning about it again.

My last full vertigo attack was in May of 2018. My diuretic seems to be keeping even the mini vertigo attacks at bay, though occasionally I feel as if my head  went on a quick trip around the room. I have coping mechanisms when out having fun... including ear plugs for hyperacusis, blue light filtering glasses and I rarely do things on my own, unless I am having a really good day. Even then I am not far from home. One thing is certain is that I will survive.

I hope you are spin free.

Love, Peace and Light! Rita

Thursday, February 14, 2019

Valentine’s Day

Valentine’s Day is a day for lovers everywhere to express there love. It is also a day I looked forward to when I was a kid. You remember making your Valentine boxes so all the other kids could put their cards for you in it. I love LOVE! There can never be too much love. 

So what if it’s a created holiday to sell cards and candy. Use this day to remember those you love, especially yourself! Self-love is the most important love there is. Without self-love you can’t fully love someone else, because you’ll always have that niggling thought at the back of your mind that you’re not worthy. I want you to know that you are worthy and deserving of love. So start replacing negative thoughts with positive ones about yourself! 

And for Valentines Day remind yourself to love yourself and others. Everyone deserves love! Keep that in mind today and everyday! Happy Valentine’s Day to everyone reading this. 

I hope you are spin free!

Love, Peace and Light! Rita

Friday, February 1, 2019


Occasionally someone will remember that I write and have published a children’s book, even though I’m not writing much other than my blogs. Today is one of those days... a friend asked me to read and talk about what inspired me to be a writer for a group of kindergarteners through second graders. Despite my health issues, I said yes. I may need a driver, but I will be there.

I just ordered some bookmarks to pass out to the kids. Hopefully, there won’t be more than 100 kids. I must say I’ve never spoken to a group that large. Kids can be tough audiences or they can be truly awesome. 

Now I just need to figure out what to talk about. LOL! I will probably say that I have been writing stories since I was in elementary school. Push my favorite book series... The Wizard of Oz and Little House on the Prairie books made me want to invent my own worlds. 

I will talk about my love of reading and the ability it has to transport the reader into different times, places and experiences. Hopefully, I can awaken the love of reading in this new generation. 

Now I just need to stay calm and remember to talk slowly and to enunciate my words so the children can understand me. 

Wish me luck. I hope you are spin free!

Love, Peace and Light! Rita