My Crazy Life

Living with a debilitating disease isn't always easy, but I make it work. Traveling, camping and concerts are still in my life. I live on the good days and the so-so days. I use aids like earplugs, a cane and blue light filtering glasses and I have the support of my wonderful husband and family. I try to help others live with their invisible/visible disabilities.

Tuesday, July 31, 2018

Pay Back

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I had four wonderful days of camping and hiking. Three out of four days I walked over 10,000 steps. My body is not used to this, since the M...
Sunday, July 29, 2018

Bryce Canyon

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We camped in Bryce Canyon this past weekend, starting Thursday. I loved Bryce better than the Grand Canyon. It was beautiful and had viewpoi...
Tuesday, July 24, 2018

Mama Mia! Here We Go Again- A Review 

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I really enjoyed Mama Mia! Here We Go Again . I wanted to sing and dance all the way through. It made me smile and laugh and even a bit tear...

I Wanna Live While I’m Alive

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To paraphrase a lyric from Bob Jovi, I wanna live while I’m alive. Despite the fact I have a bunch of chronic diseases, I choose to enjoy th...
Monday, July 23, 2018

Writing 

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The other night I had the strangest dream/nightmare. It feels like a story, so I started writing some ideas down and even began writing on i...
Saturday, July 21, 2018

Quiet Weekend 

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This is going to be a relatively quiet weekend. I wanted to go to Fremont Street for the concerts, but Ralph doesn’t want to and quite frank...
Friday, July 20, 2018

Forgotten Diagnosis 

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When asked to share a list of my diagnoses, I put migraines, allergies, sinuses, mitral valve prolapse, asthma, fibromyalgia, osteoarthritis...
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About Me

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My crazy life
Redefining myself as an invisible disability advocate through my writing, travels and life. I have Ménière’s Disease, Osteoarthritis, Lichen Sclerosis, Asthma, Migraines, Costochondritis, GERDs, Gastritis, Overactive Bladder, Fast Pulse, Fibromyalgia and Food Allergies. I live on the good days to carry me through the bad days.
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